Holding My Breath
Every three months I hold my breath. Hoping for the best but frozen by the thought of the worst. I squeeze Sam a little bit tighter, rock him a little bit longer, tell him I love him a little bit louder. I fight my anxiety and tell the negative voice inside my head to shut up! You see Sam has a genetic disorder called Beckwith Wiedemann Syndrome (BWS). BWS is a congenital growth disorder. We are thankful that on the spectrum of disorders, this one will likely have a minimal impact on Sam’s life. In fact, we wouldn’t have even … Read more